Friday, June 11, 2010

Riddle Me This, Batman.

About a month ago, David fell while playing. He falls often due to his hypotonia. He was crying after the fall. So, I did a really quick assessment to see what was injured. His left thumb was dislocated.

Me being calm Mom- most of the time- I just said to David that we're just going to make a quick trip to the emergency room and have someone just pop that back in for you. I told him everything would be fine. Just as we're standing at the front door. David looked at his dislocated thumb, which looked like a broken chicken wing, and just popped it back into place. He then took me to the kitchen to get some mixed nuts- his new favorite snack.

Fine, he dislocated his thumb and popped it back in by himself.

Since then, his teacher's have told me that he dislocates both thumbs, (which looks REALLY grotesque) his left knee and his left ankle. He tries to dislocate his elbows, but that's not happening and it pisses him off.

I called the pediatrician's office and explained what was going on. When he dislocates his thumbs it's not at the knuckle, it's in the hand. It looks plain nasty. The pediatrician's response was if he's not acting as if he's in pain, I should leave him alone.

I called the Autism Center at U.M.D.N.J. David has been seen there before. I explained the situation to the receptionist. She told me she's never heard of that before. She placed me on hold to get a professional opinion. The consensus was that what he's doing is a behavior ( NO SHIT SHERLOCK) and "they" were going to consult a "specialist" who would call me back.

I'm still waiting for that call.

So now my days have new phrases. In addition to- Get down, David. Have nice sitting, David. Pull up your Pull-Up, David. I know have- Put your thumbs back, David. And before walking anywhere- Where is your ankle, David?

I don't know why he dislocates his own joints. I don't know why he even can dislocate his own joints. He does have hypotonia. That's the excuse the pediatrician used. Because of his low muscle tone, he is very flexible and can dislocate his own joints.

I want him to stop dislocating his own joints! Why can't he just crack his knuckles like other kids?

I wonder if David weren't autistic, would the docs be more willing to investigate why a child can dislocate his own joints. I tried to tell them that my left knee started to dislocate whenever it felt like it when I was 13. Years of PT and two surgeries later my knee cap knows where it belongs and stays there. Is there some connection? I will find a doc eventually who will figure this out. In the meantime. I and everyone who knows David just has to be sure that all his joints are where they belong at all times.

David fell during gym class and cut his forehead. Right between the eyes. He needed stitches to close the wound. It happened so fast, his falling, that his aide wasn't sure if he fell because he was dancing or he fell because his ankle wasn't where it was supposed to be.

My kid can't be the only one who does this. Can he? If others out there have a similar issue, please contact me.

P.S.- To the person who sent me an e-mail from her mobile phone on 6/9.- I really meant it when I said call me. Anytime, honestly.


Hummingbirder said...

Your post made me laugh...I just love how you describe what's going on.
I'm sorry to hear about the recent popping out the joints. I would think it would be painful to have them out of socket. Two of my kids dislocated their elbows and they were crying until we got them to the dr. and they popped them back in place.
Prayers and hugs...

X said...

Oh my heavens, that is a bit of a pickle, but I bet you his behaviors also may have to do with sensory issues. Never had to deal with joint dislocationg; however, my child loves to purposely fall, or purposely swing his/her arm until it swells, bruises, bleeds, and enjoy its!

He/she also broke their arm 5 times by doing these behaviors, each time, lots of laughter, and then enjoying his/her floppy arm like it wasn't even painful. First time yes cries, times after that, lots of giggles. I honestly think its related to getting some sort of sensation from it, for my child opting for more OT, massages, daily swimming activities, and lots of redirection has helped! Might help for your little one as well, good luck!

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